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Daniel has had a bad night 2 and a half to 3 hours of dystonic spasms he was really struggling he's a bit more settled now but his heart rate is still sitting at 105/106 so I think he's over the worst of it till his next attack he was struggling to breathe and he was so hot we had to put some cold flannels on him he only settled when I got him out of bed and sat him on my knee (which made me cry as his back is so badly twisted and seeing it makes me upset) so my body is aching, but it doesn't ma
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Sharing an old video from my personal facebook just daniel being daniel ( please ignore the state of me 🤣🤣) 🥰🥰🥰🥰🥰🧡🧡🧡🧡🧡🧡🧡🧡 sending love, strength and positivity to you all keep smiling much love stacey daniels mam ..... he's some boy this son of ours 🥰🥰🥰 | My Daniel
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