Muscular Dystrophy - SlideServe
Muscular Dystrophy - SlideServe
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“Respiratory Function” Definition: How well the lungs and breathing muscles work. Duchenne context: Weak respiratory muscles increase infection and breathing risks. Parent POV: A simple cough becomes something I listen to with my whole body. Harrison’s lung function is below 40%. #duchennemusculardystrophy #respiratoryhealth #duchenne #dmd #duchenneawareness | Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy
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“Non-ambulatory” Definition: No longer able to walk. Duchenne context: This isn’t the end of living - it’s a shift in how living looks. It means wheelchairs, adaptations, new ways of doing things, and constant problem-solving so kids stay included, learning, and engaged with the world. It’s not just my job to step up to ensure this. Parent POV: When your child becomes non-ambulatory, it’s not that they stop wanting to explore or participate - it’s that we learn how to remove barriers. The chair
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