Having more choices about the treatment of hemophilia is empowering, but it also comes with challenges, columnist Jennifer Lynne writes.
Researchers said a better understanding of barriers to bone health in hemophilia and VWD is needed, and guidelines should be ...
The FDA has approved fitusiran, now Qfitlia, as a treatment for hemophilia A or B patients, ages 12 and older, with or ...
Columnist G Shellye Horowitz talks with Heidi Bentz about her bleeding issues and decades-long journey to a von Willebrand ...
Columnist Joe MacDonald explains how holding on to rituals has gotten his family through some challenging times with chronic illness.
My nurse friend remembered me as a mom whose focus was her son, not herself, and who carried a heavy weight of body and soul. Seeing her reconnected me with a significant piece of my past. Her ...
Columnist Alliah Czarielle, who's experienced the ups and downs of her husband's hemophilia, savors time when nothing special is going on.