My 2-Week-Old Baby Received A Scary Diagnosis. Then Her Doctor Left Us With An Ominous Warning.

"My heart thrummed as the words on the page blurred. Gastrointestinal issues. Genitourinary. Hearing loss. Pulmonary problems." ...
Winston-Salem Journal

'Today's my 5K day!' — Boy with Apert syndrome greets runners at fundraiser to raise awareness of his rare genetic condition

As runners were about to begin the 5K, Cam Elliott was given the honor of seeing them off at the line and blowing the air horn to get things started this chilly Saturday morning. Elliott, 8, was there ...
KBTX

Madisonville rallies around one-year-old facing Apert Syndrome

MADISONVILLE, Texas (KBTX) - The Madisonville Consolidated Independent School District hosted a volleyball tournament to support Waylon, a one-year-old facing the challenges of Apert Syndrome. Waylon ...

Local mom says 2-year-old is bullied for her looks. Now, she’s asking parents to help end bullying against kids with disabilities.

Now, at two years old, Mirlee Janice Ramirez and her beautiful smile show how far they've come since KENS 5's Sarah Forgany first interviewed her mother in 2022.
Dewsbury Reporter on MSN

‘Amazing’ Mirfield youngster runs marathon to raise over £2,000 for charity supporting best friend with rare genetic syndrome

A youngster from Mirfield has run a marathon to raise over £2,000 for a charity which is supporting his best friend who was born with a rare genetic medical condition.