Avidity supports World Duchenne Awareness Day, International Myotonic Dystrophy Awareness Day, FSHD Society Walk & Roll to Cure FSHD and Global Genes Week in RARE Avidity reported groundbreaking data ...

Friar Fight Rocks the River returns to Legacy Park in downtown Ada for a second year on July 26. Join Parent Project Muscular Dystrophy for a night of music and friends raising money and awareness for ...

WASHINGTON, Sept. 1, 2024 /PRNewswire/ -- Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), will join forces with ...

WINNETKA, Ill. (NewsNation Now) — Watching 5-year-old Hunter Small strap on his helmet and ride his Spiderman bike may not seem like a big deal – but it is. Hunter and his younger brother Noah, 4, ...

A FUNDRAISING event held at a gym to support a young boy with a muscle-wasting condition raised more than £4,000. AGV HQ, in Newtown Road, hosted the “Ben vs Duchenne 79 Team Challenge” on Sunday.

Daniel and Lindsey Flessner are pictured with their sons, Mason and Dawson. Daniel and Lindsey Flessner are pictured with their sons, Mason and Dawson. To pitch a ‘My Turn’ guest column, email ...

World Duchenne Awareness Day activities kick off today with the inaugural Bad Shirt Friday. Families, friends, and allies are invited to break out their most outrageous shirts to raise awareness and ...

With his face focused on the screen, Brandon Hale's fingers moved like lightning as he created masterpieces in Minecraft. "I'm currently building a house," the typically shy 16-year-old said when ...

12-year-old Deklan Locke, who has Duchenne muscular dystrophy, uses a power wheelchair and raises awareness about the disease. Duchenne muscular dystrophy is a rare genetic disorder that causes muscle ...

The inaugural Steps For Hope 5K is set to take place in Brick, New Jersey, organized by LeTip of Brick in partnership with JAR of Hope. This charity run aims to raise awareness and funds for Duchenne ...

New York, Aug. 26, 2024 (GLOBE NEWSWIRE) -- September marks the kick-off of the Muscular Dystrophy Association (MDA) ‘National Muscular Dystrophy Awareness Month’ to raise awareness and critical funds ...